I read in a magazine about how lilly pulitzer
had celebrities design some clothing and the proeeds are going to a charity
for kids with EB. That is the same disease that took the precious life of jtsetsma.
On the lillypulitzer website there is a link to this family's blog.
The mother and father's first child was stillborn and their second child has EB. We can follow their story and pray for them as we did with Jameson.